Achievements

Jan

Cancer Voices cycling groupCancer Voices cycling group participate in various events, in addition to our regular 8am Sunday morning rides every week throughout the year.

Cancer Voices walking group continues 1hr walks in Belair National Park, 9.30am every Tuesday.

Feb:  

2-3 Feb, 2017 FCIC/COSA Survivorship Conference in Adelaide.  Cancer Voices SA member Chris Christensen contributed on the Program Committee throughout 2016, then co-chaired the Healthy Living session and spoke on this panel.  Other Cancer Voices members who were invited speakers  were Tony Hamdorf, Karen van Gorp, Julie Marker.

Media - World Cancer Day 4 Feb:  ABC News - Research into Quality of Life issues dentified by cancer survivors at http://www.abc.net.au/…/research-into-quality-of-li…/8241754http://www.abc.net.au/…/research-into-quality-of-li…/8241754  and Cancer study to focus on 'tsunami of survivors' http://www.abc.net.au/…/new-cancer-treatments-creat…/8241556http://www.abc.net.au/…/new-cancer-treatments-creat…/8241556

11 Feb, UniSA Palliative and Supportive Care Nursing Workshops on 'Difficult Conversations'.
Wonderful, insightful personal stories presented by Lesley Shears & Maxine Williams that commenced the interactive discussions with students, and additional perspectives added by brief presentations from Chris Christensen & Julie Marker.  Thank you again to Dr Kev OShaughnessy for excellent facilitation of these teaching sessions and inviting Cancer Voices speakers, for a 5th consecutive year.

Cancer Voices are assisting multiple researchers with their requests for consumers to be involved and provide feedback on their grant funding applications.

Bowel cancer consumers-researchers interest group meets again at SAHMRI with Dr Dan Worthley, Susi Woods & Tammy Lannagan.

Cancer Voices members submit their stories to provide context and personalised insights to the Draft SA Cancer Control Plan 2017-2020.

March:

Australian Institute of Health InnovationAustralian Institute of Health Innovation workshop, 17 March 2017, Sydney.  Speakers/ consumer panelists: CVSA Exec Team Stephanie Newell, Chris Christensen, Eric Browne, Julie Marker

  • Consumer and community Involvement in Research Training Workshop – 20 June 2017

  • Cancer Nurses Society of Australia Annual Congress – 15-17 June 2017

  • Bowel Cancer Research Interest Group Meeting - 14 June 2017

  • UNISA Allied Health Outcomes Calculator Launch – 13 June 2017

  • SAHMRI South Australian Clinical Collaborative Research Meeting – 7 June 2017

  • Mitcham Council Presentation of Community Grants – 5 June 2017

  • South Australian Cancer Services Strategy Committee Meeting – 2 June 2017

  • PC4 Concept Development Workshop – 1 June 2017

  • Safety and Quality – presentation to Flinders University Masters Students – 25 May 2017

  • Senate Inquiry into funding for research for cancers with low survival rates – 18 May 2017

  • Consumer Health Forum (CHF) Medicinal Cannabis Forum – 18 May 2017

  • PoCOg Concept Development Workshop – 17 May 2017

  • PC4 Scientific Symposium – 10 May 2017

  • AGITG Consumer Advisory Panel – 11/12 May 2017

  • Health Consumer Alliance (HCA) Consumer Advocate Network Digital Health Update – 3 May 2017

  • UNISA Consumer Engagement in Health Care Presentation to Professional Certificate Students – 27 April 2017 

  • Launch of SA Genomics Health Alliance 30 August

  • Presentation to the Adelaide and Mitcham Prostate Cancer Group – 24 August 2017

  • Ministerial Roundtable 23 August 2017

  • UniSA Cancer Care Research Symposium 21 August

  • SAHMRI-HCA Consumers in Research Committee meeting – 16 Aug

  • SAHMRI Bowel Cancer research interest group 9 August

  • Meeting with SA Pathology – 17 July 2017

  • Advanced Care Planning Meeting – 10 July

    • Patients as Teachers – Adelaide University 3rd Year Medical Student Tutorials – ongoing March to September 2017

    •  

Jan

First meeting of Bowel cancer consumers-researchers interest group at SAHMRI with Dr Dan Worthley, Susi Woods & Tammy Lannagan.

Cancer Voices cycling group participate in various events, in addition to our regular Sunday morning rides every week throughout the year.

Feb

UniSA palliative & supportive care nursing students workshop with Mariann McNamara from Cancer Voices SA providing her perspectives on 'Difficult Conversations'.

March  

Commence 2016 'Survivors as Teachers' series of 14 small group tutorials with Adelaide Uni 3rd year medical students.  March-Aug.

April  

Cancer Voices SA feedback submission to SA Health  Draft Guidance Document for Human Research Biobanks and Associated Data

 

January -

Oncofertility Register:  meeting to establish a SA chapter of this national online registry.  Cancer Voices Reps Monique, Jon and Liam participated.  
http://newsroom.unsw.edu.au/news/health/online-registry-will-help-cancer-patients-preserve-their-fertilityhttp://newsroom.unsw.edu.au/news/health/online-registry-will-help-cancer-patients-preserve-their-fertility

February -

12 Cancer Voices survivors  participated in a 'GP-oncology shared care for survivorship' workshop organised by the Primary Care Collaborative Cancer Clinical Trials Group (PC4). 

 UniSA Palliative and Supportive Care Nursing Forum - 'Survivors as teachers' presentations by Kathy Seager and Cath Caon.

 The 2015 national cancer Survivorship Conference held at the Adelaide Convention Centre on 6-7 February 2015, and convened by Flinders Centre for Innovation in Cancer.

The inaugural Ashleigh Moore Oration was presented by Sally Crossing AM, for her outstanding contributions to clincal practice, research, policy and advocacy affecting cancer survivors.  Listen to the Oration at https://www.youtube.com/watch?v=Ag6tSDuM3r4

Many of the oral presentation slides and posters are available on the Survivorship Conference website at http://www.survivorship2015.org/program-7/http://www.survivorship2015.org/program-7/ and http://www.survivorship2015.org/poster-presentations/http://www.survivorship2015.org/poster-presentations/

Cancer Voices SA presentations at the Conference included:

“More than just telling my story” when cancer survivors become teachers:  Julie Marker, Louise Bastian, Stephanie Newell, Kath Lockier

 Why aren’t we ‘Measuring what matters to cancer survivors’ in Australia? abs# 59 (poster)  Julie Marker, Agnes Vitry

 Working together to ensure structured exercise is safe and more accessible for cancer survivors  abs# 72(poster) Jason Schild, Tricia LaBella, Julie Marker 

Research on cancer survivorship in Australia: current status, gaps and needs abs# 78 (poster) Agnes Vitry, Julie Marker

 Cancer Voices SA is an active partner in the 'Return to work after cancer' project with reps on the project Steering Committee: Monique Bareham, Chris Christensen and Julie Marker 

Supporting Return to Employment after Cancer in Disadvantaged Communities  abs# 54 (poster) Bogda Koczwara 

and Julie Marker made key contributions as member of the Consumer Advisory Groups of  Cancer Clinical Trial Groups 

Strengthening survivor’s roles in cancer trials advisory groups. abs# 53 (poster) Joint Community Advisory Group (JCAG)

 'Engage' Community Forums to raise awareness of Gastro-Intestinal cancers – an initiative led by GI Cancer survivors and carers. abs# 44 (poster) GI Cancer Institute/Australasian Gastro-Intestinal Trials Group (GICI/AGITG) Consumer Advisory Panel 

 'Yarning about cancer' - presented by Julie Marker & Sandy Miller at SA Cancer Services planning day for 2016-2020 Cancer Control Plan, Aboriginal companion document

 

3 Feb - Ashleigh Moore OAM, Chair of Cancer Voices SA  - Rest in Peace.  Sadly Ashleigh passed away from lung cancer.  About 300 people attended his funeral on 11 Feb 2014.

 

Activities organised by Cancer Voices 

 March - Ashleigh Moore Memorial bike Ride  (see photos at https://www.flickr.com/photos/cancervoicessa/sets/72157643098474393  About 80 participants

April -Jul   'Patients as Teachers' - Cancer Voices commenced series of 16 x 1hr tutorials with small groups of 8 medical students at Adelaide Uni, describing the personal impacts of cancer

April- Nov - Exercise and Cancer - Cancer Voices commences discussions around increasing fitness coaches & personal trainers knowledge & understanding of cancer.

Oct-Exercise and Cancer Forum, CVSA in collaboration with Regency TAFE Diploma of Fitness,   Julie Marker, Tricia LaBella, Jason Schild

April - Commenced Cancer Voices SA Scoop.it siteCancer Voices SA Scoop.it site for posting links to articles and reports relevant to people affected by cancer.  Check it out now!  Scoop.itScoop.it

Oct - CVSA Challenge Ride event (photos)  detailsdetails

 

Presentations/ submissions by Cancer Voices SA

February - 'Patients as Teachers' personal impacts of cancer, presentation to UniSA palliative and supportive care nursing students by Tony Hamdorf

March - Response to Cancer Australia: draft Recommendations for the identification and management of fear of cancer recurrence in adult cancer survivors; contributed to Cancer Voices Australia submission

 

Cancer Voices Achievements in 2013

 Presentations

Here is a list of achievements for CancerVoices SA in 2010.

Here is a list of all the achievements for CancerVoices SA in 2009.

Here is a list of achievements for CancerVoices SA in 2008

Contact

Cancer Voices South Australia

 

Ph.  0431 691 956 

 

PO Box 588, Kensington Park SA 5068