2015

2015

January -

Oncofertility Register: meeting to establish a SA chapter of this national online registry. Cancer Voices Reps Monique, Jon and Liam participated.
http://newsroom.unsw.edu.au/news/health/online-registry-will-help-cancer-patients-preserve-their-fertility

February -

12 Cancer Voices survivors participated in a 'GP-oncology shared care for survivorship' workshop organised by the Primary Care Collaborative Cancer Clinical Trials Group (PC4).

UniSA Palliative and Supportive Care Nursing Forum - 'Survivors as teachers' presentations by Kathy Seager and Cath Caon.

The 2015 national cancer Survivorship Conference held at the Adelaide Convention Centre on 6-7 February 2015, and convened by Flinders Centre for Innovation in Cancer.

The inaugural Ashleigh Moore Oration was presented by Sally Crossing AM, for her outstanding contributions to clincal practice, research, policy and advocacy affecting cancer survivors. Listen to the Oration at https://www.youtube.com/watch?v=Ag6tSDuM3r4

Many of the oral presentation slides and posters are available on the Survivorship Conference website at http://www.survivorship2015.org/program-7/ and http://www.survivorship2015.org/poster-presentations/

Cancer Voices SA presentations at the Conference included:

“More than just telling my story” when cancer survivors become teachers: Julie Marker, Louise Bastian, Stephanie Newell, Kath Lockier

Why aren’t we ‘Measuring what matters to cancer survivors’ in Australia? abs# 59 (poster) Julie Marker, Agnes Vitry

Working together to ensure structured exercise is safe and more accessible for cancer survivors abs# 72(poster) Jason Schild, Tricia LaBella, Julie Marker

Research on cancer survivorship in Australia: current status, gaps and needs abs# 78 (poster) Agnes Vitry, Julie Marker

Cancer Voices SA is an active partner in the 'Return to work after cancer' project with reps on the project Steering Committee: Monique Bareham, Chris Christensen and Julie Marker

Supporting Return to Employment after Cancer in Disadvantaged Communities abs# 54 (poster) Bogda Koczwara

and Julie Marker made key contributions as member of the Consumer Advisory Groups of Cancer Clinical Trial Groups

Strengthening survivor’s roles in cancer trials advisory groups. abs# 53 (poster) Joint Community Advisory Group (JCAG)

'Engage' Community Forums to raise awareness of Gastro-Intestinal cancers – an initiative led by GI Cancer survivors and carers. abs# 44 (poster) GI Cancer Institute/Australasian Gastro-Intestinal Trials Group (GICI/AGITG) Consumer Advisory Panel

'Yarning about cancer' - presented by Julie Marker & Sandy Miller at SA Cancer Services planning day for 2016-2020 Cancer Control Plan, Aboriginal companion document

March

Commenced the 2015 'Survivors as teachers' series of 13 x 1hr tutorials with 150 Adelaide Uni medical students (13 groups of 12 students).

Cancer Voices SA 2015-2020 Strategic Plan - update and planning process skillfully faciliated by Deputy Chair Chris Christensen.

April

Pantani the movie - film night/ fund raiser organised by friends of Cancer Voices

Return to Work after Cancer project - Active invovement of Cancer Voices reps (Monique Bareham, Chris Christensen, Julie Marker) in conducting the focus groups, forums to hear the experiences and determine the gaps in services and supports. Partnership with Flinders Centre for Innovation in Cancer

May

SA Statewide Survivorship Framework project Workshop - Cancer Voices reps Chris Christensen & Julie Marker

Transforming Health - consumer workshop convened by Health Consumers Alliance. Active input from Cancer Voices Chris Christensen & Julie Marker

SA PsychoOncology Research Group - Cancer Voices reps Chris Christensen & Julie Marker involved

June

'Survivors as teachers' series of 11 x 1hr tutorials with 250 nursing students at Flinders Uni School of Nursing

Cancer Voices Walking Group commences, every Tuesday morning 10am, 1hr walks in Belair National Park. All welcome.

Consumers involvement in research - presentation by Julie Marker at Flinders Uni PhD students Knowledge Exchange workshop

SA Statewide Survivorship Framework project Workshop - presentations by Cancer Voices reps Chris Christensen & Julie Marker, active input also from Monique Bareham & Don Piro

Men's Health Forum - attended by Cancer Voices Julie Marker & Caroline Phillips

Consumer feedback sought by RAH Ethics Committee on use of tissues with outdated BioBanking consent forms. Cancer Voices opinions presented.

July

Return to Work after Cancer project - Consensus Group meeting. Active invovement of Cancer Voices reps (Monique Bareham, Chris Christensen, Julie Marker). Partnership with Flinders Centre for Innovation in Cancer

Reducing the Gap between Research Policy and Practice Initiative - Transforming Health: Shaping the Research Agenda Workshop. Shared initiative of PHCRIS (Primary Health Care Research & Information Service), HSRAANZ (Health Services Research Association Australia & New Zealand), Cancer Voices SA, SAHMRI (SA Health & Medical Research Institute), Flinders Uni, Adelaide Uni

Consumer engagement in research - presentation by Cancer Voices Julie Marker at Primary Health Care Research pre-Conference workshop

Medical Benefits Scheme Review - Consultation meeting - attended by Cancer Voices Chris Christensen in Adelaide

August

Chemotherapy under-dosing incident. Cancer Voices SA (Executive Team) send letter of concern, & follow up action in collaboration with Health Consumers Alliance through various avenues around Safety & Quality, Medicines Policy,

Prostate Cancer Symposium - attended by Julie Marker & Caroline Phillips

CareSearch Palliative Care Knowledge Network - National Advisory Group meeting - Cancer Voices rep Mariann McNamara

Cancer research topics presented at UniSA workshop by Cancer Voices Dr Agnes Vitry

September

October

Cancer Voices Annual Challenge Ride - 70, 35 & 20km ride routes, more than 150 cyclists

GastroIntestinal Cancer Community Forum at Gawler

November

Reducing the Gaps between Research, Policy, Practice - Breakfast Conversation - workshop led by Cancer Voices SA with Health Consumers Alliance SA, Primary Health Care Research & Informations Service, Health Services Research Association of Australia & New Zealand, SA Health & Medical Research Institute. About 50 participants.

Cancer Voices Annual General Meeting

COSA Annual Scientific Meeting - Cancer Voices was represented by Chris Christensen, Deputy Chair - speaking up for people with a rare cancer

Chemotherapy underdosing - Marshall Review released.

December

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