Community Noticeboard

 

 

NOTICE OF OUR ANNUAL GENERAL MEETING 2019

Sunday 24 November 2019

10.30-11.30am Newland Park Oval, Hallett Road, Stonyfell

ATTACHMENTS

Cancer Voices SA 2015-2020 Strategic Plan and Priorities


Dear Cancer Voices SA members,

Cancer Voices is a 100% volunteer organisation, led by people passionate about using their experience to raise a voice and advocate to make a difference for people affected by cancer.

Cancer Voices SA Annual General Meeting will be held on Sunday 24 November 10.30am-11.30 under the trees on Newland Park oval, Hallett Rd, Stoneyfell ( opposite Taylor Blend cafe). This will be after the usual Sunday morning cycling group ride, so you’ll recognise some of CVSA member by our distinctive cycling jerseys. BYO hat, chair/ picnic rug, coffee etc. As you are aware, we are 100% volunteers and have very limited funds, so this venue fits our budget.

We welcome nominations from anyone interested to join the Executive Team (10 positions - with plenty of opportunity for people to contribute diverse skills or experience to the team). A lot of communication between the Executive Team members occurs 'out-of-hours', by email and/or by teleconference. We are specifically looking for new members to take on some leadership roles in 2020, finance assistant (specifically with MYOB experience), note taking at meetings.

Please find attached the Agenda, Executive Team nomination form and proxy voting form if you would like to vote but are unable to attend the meeting. Also attached is the Cancer Voices SA 2015-2020 Strategic Plan and Priorities, which will be updated early in 2020.

The Minutes of the 2018 AGM, Chair's Annual Report for 2019 and Financial Report for 2019 will be available at the meeting.

Thank you for your interest, donations and support during 2019. We are in our 12th year as an organisation and with your support, looking forward to setting directions for the next five years.

I hope to see you at the CVSA Annual General Meeting and look forward to your continued support in 2020.

Warm regards
Chris Christensen

Chair

Cancer Voices SA

 

 

 Find the 2018 Cancer Voices SA Annual Report here.

Chris Christensen presented a summary of the Annual Report, activities and outcomes to those who attended the Annual General Meeting on 2 Dec 2018.

 

Yes, cancer survivors and carers CAN be very effective teachers, according to feedback from 3rd year medical student tutorials regarding our Cancer Voices SA  'Survivors as Teachers' program :

“…an amazing and intimate insight into the life of a family living with cancer.  
...Interesting factors I would not have otherwise learned or heard about”  
...”treat a patient as a real person, rather than a case to solve”
…. “makes you rethink about how you will talk to and listen to patients when you are in the hospital.  
....Opens your eyes to the way patients want to be treated and how much they want from the health system"
 
Please contact [email protected] if you wish to be involved. 
 
Tutorials are held with a small group of 10-12 students, 3rd year medical students, and are held most tuesdays from 2-3pm at Adelaide Uni in the New Medical School during March to September.  This is our 7th year (in 2018) of running this highly regarded series of 15 or so tutorials/year.
 
We have a Cancer Voices facilitator for tutorials, a main speaker (or couple) who share their experience, insights and tips for good practice regarding the impact of a cancer diagnosis, treatment and beyond ... on the whole of your life, family, relationships, finances, ... things you've learned about yourself, strategies for coping,  things you've appreciated from the clinicians you've encountered, and things that could be done better.
 

Get fit, stay fit, have fun!

Join the Cancer Voices Cycling group.  We ride every Sunday morning, starting at 8am at St Peters Girls School carpark off Hallett Rd, Stonyfell.  

We ride on road bikes up into the beautiful Adelaide Hills for about 2 hrs / about 50kms, at moderate pace.  

Even if you are not a cyclist, join us for coffee - usually at Taylor Blend Cafe on Hallett Road opposite Newland Oval, from about 10.30-11.30am.

For more details contact [email protected]

enzo-pete-brendon

 

 

 

We invite people affected by cancer, their family, friends and/or supporters, to join the Cancer Voices SA Walking Group.

We meet every Tuesday (weather permitting) at 9.30am for medium paced walks of about one hour duration. 

Walks start from Belair Golf Club Car Park; meet Belair Golf Club Car Park; meet by the side gate into Belair National Park.by the side gate into Belair National Park. Ph Chris on 0431 691 956 for more details.

 

 


Entry to the car park located before the Park Information Centre is free, via Upper Sturt RoadEntry to the car park located before the Park Information Centre is free, via Upper Sturt Road (click link to map).

The walking group is free, and a casual relatively informal arrangement. 

Cancer Voices Walking Group contact and information: Chris Christensen  0431 691 956

 

 

Cancer survivors, family, friends and cancer researchers - join in our friday lunchtime 'walk and talk' group.  

We welcome you to come and take the opportunity for informal networking, idea sharing and idea generating while we walk

We meet in the foyer of the SA Health & Medical Research Institute at 12.30pm every friday, and walk along the river Torrens for about 1hr.  Others join in at the Adelaide Uni footbridge at the pedestrian lights at about 12.50pm.

For more information contact [email protected] or Julie on 0405 806 857

 

A summary of the new SA Liberal Government Health Policy (particularly where relevant to cancer) has been collated by Cancer Voices SA.  

Detailed 8 page PDF attached here.

 

In summary, there is specific mention of cancer in the following policy documents:
 
  • - Palliative care purpose built at Modbury Hospital
  • - Palliative care and more colonoscopies at Noarlunga Hospital
  • - a new car parking scheme for all metro public hospitals
  • - Country Cancer Services - double the chemotherapy delivered in regional SA including implementing a statewide electronic cancer information and prescribing system
  • - a Commission on Excellence and Innovation in Health to provide leadership and advice within SA Health and the Government on clinical excellence and innovation - to include consumers and modelled on the NSW Clinical Commission
  • - Bowel Cancer Prevention - wipe out waiting lists for colonoscopy, publish numbers and waiting times, aim for national target of four months for colonoscopy after positive test result.
  • - targetting preventive health based on risk profile and Better Prevention for a Healthy SA
  • - new Women's and Children's Hospital
  • - Hospital Outpatient Waiting Lists
  • - Engaging Communities and Clinicians for Better Health - decentralising public health system through the establishment of metropolitan and regional boards of management
  • - Investing in Country Hospitals

 

 

 The Final Report of the Senate Committee Inquiry into Funding for Research in Cancers with Low Survival Rates was published on 28 November 2017.

25 Recommendations were made eg re:  …. clinical trials, access to trials, data collections, PBS flexibility for low survival rate cancers suggested,  equitable access to genetic testing via MBS ,  …. and targets with reporting to govt

Consumers & community - key partners in biobanking.  Poster and Rapid-fire presentation at the Australasian Biobanking Network Conference in Adelaide on 13-14th Oct 2016. See poster here.

 

SAHMRI (SA Health & Medical Research Institute) clinician/ researchers  Dr Dan Worthley, Susi Woods and Tamsin Lannagan  invite people affected by colorectal cancer (survivors, patients & carers) to meet and discuss possilities to contribute to their cancer research.   Dr Worthley and his team would like to describe the work they do, and seek suggestions for further research that ‘people affected by colorectal cancer’ wish to see them do.

Dr Worthley’s research currently involves testing drugs or combinations of drugs and other agents on their ‘living cells biobank' of colorectal cancer samples, and investigating genetic mutations found in colorectal cancer cells.
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Contact

Cancer Voices South Australia

 

Ph.  0431 691 956 

 

PO Box 588, Kensington Park SA 5068