Community Noticeboard

Yes, cancer survivors and carers CAN be very effective teachers, according to feedback from 3rd year medical student tutorials regarding our Cancer Voices SA  'Survivors as Teachers' program :

“…an amazing and intimate insight into the life of a family living with cancer.  
...Interesting factors I would not have otherwise learned or heard about”  
...”treat a patient as a real person, rather than a case to solve”
…. “makes you rethink about how you will talk to and listen to patients when you are in the hospital.  
....Opens your eyes to the way patients want to be treated and how much they want from the health system"
 
Please contact [email protected] if you wish to be involved. 
 
Tutorials are held with a small group of 10-12 students, 3rd year medical students, and are held most tuesdays from 2-3pm at Adelaide Uni in the New Medical School during March to September.  This is our 7th year (in 2018) of running this highly regarded series of 15 or so tutorials/year.
 
We have a Cancer Voices facilitator for tutorials, a main speaker (or couple) who share their experience, insights and tips for good practice regarding the impact of a cancer diagnosis, treatment and beyond ... on the whole of your life, family, relationships, finances, ... things you've learned about yourself, strategies for coping,  things you've appreciated from the clinicians you've encountered, and things that could be done better.
 

Cancer survivors - seeking your help and advice.

Focus groups are being held to help develop an  ‘overview’ map of the various stations in a cancer treatment journey.

To book a place at a focus group please contact [email protected]  or [email protected]
 
 

 

 

Rural Cancer Stories is a new online resource that features the stories of country cancer patients, survivors and their carers. It includes information on how they have coped and continue to cope with cancer, things they wish they knew earlier and practical tips they want to share with people who are going through similar experiences.

The project was funded by Cancer Council SA, the Sansom Institute for Health Research and the auDA Foundation.

We are now looking for people who are 18 years of age or older, live outside a metropolitan area, have watched at least three of the videos and have been diagnosed with cancer in the past 10 years (or supported/cared for someone who fits this description) to help evaluate this resource.

If you are interested in assisting so we can understand its impact and make further improvements, we would be very grateful. Please email Kate at[email protected] or phone 08 8302 1840 to find out more. Please leave a voice message with your name and phone number and we will return your call if we are unable to answer straight away.

You are invited to take part in stakeholder consultation on developing a strategic framework and roadmap for digital/eHealth applications in cancer care. This consultation is part of a study being run by Flinders University and aims to give the opportunity to relevant stakeholders to have input into the development of a strategic framework and roadmap for more effective implementation of digital/eHealth applications in cancer care in Australia.

Participation will involve either focus groups or an individual interview, (with the possibility of additional participation in a subsequent stakeholder consensus meeting for some participants).

Your input to this project will be much appreciated. For more information, including participant information and consent form and focus group/interview topic guide, please contact the Project coordinator Dr Emma Kemp, at [email protected] or on 8204 7150.

 An invitation to attend the Adelaide - Mitcham Prostate Cancer Support Group Meeting on

Thursday 26th April 2018

Guest Speaker :   Dr Kevin O’Shaughnessy,  University of SA

Topic:    Love, Faith and Hope for men with Prostate Cancer and their partners

 Where:   Colonel Light Gardens RSL Club, 4 Prince George Parade, Colonel Light Gardens

Time:       7.00p.m. – 8.45p.m. (Tea/coffee provided)

 Contact:    For more information: Ralph 0406 006 654, Roland 0438 604 323 Jeff 8277 3424

    or visit www.adelaide-mitchampcsg.org

All welcome to attend this free informative evening

A summary of the new SA Liberal Government Health Policy (particularly where relevant to cancer) has been collated by Cancer Voices SA.  

Detailed 8 page PDF attached here.

 

In summary, there is specific mention of cancer in the following policy documents:
 
  • - Palliative care purpose built at Modbury Hospital
  • - Palliative care and more colonoscopies at Noarlunga Hospital
  • - a new car parking scheme for all metro public hospitals
  • - Country Cancer Services - double the chemotherapy delivered in regional SA including implementing a statewide electronic cancer information and prescribing system
  • - a Commission on Excellence and Innovation in Health to provide leadership and advice within SA Health and the Government on clinical excellence and innovation - to include consumers and modelled on the NSW Clinical Commission
  • - Bowel Cancer Prevention - wipe out waiting lists for colonoscopy, publish numbers and waiting times, aim for national target of four months for colonoscopy after positive test result.
  • - targetting preventive health based on risk profile and Better Prevention for a Healthy SA
  • - new Women's and Children's Hospital
  • - Hospital Outpatient Waiting Lists
  • - Engaging Communities and Clinicians for Better Health - decentralising public health system through the establishment of metropolitan and regional boards of management
  • - Investing in Country Hospitals

 

 

 The Final Report of the Senate Committee Inquiry into Funding for Research in Cancers with Low Survival Rates was published on 28 November 2017.

25 Recommendations were made eg re:  …. clinical trials, access to trials, data collections, PBS flexibility for low survival rate cancers suggested,  equitable access to genetic testing via MBS ,  …. and targets with reporting to govt

 

We invite people affected by cancer, their family, friends and/or supporters, to join the Cancer Voices SA Walking Group.

We meet every Tuesday (weather permitting) at 9.30am for medium paced walks of about one hour duration. 

Walks start from Belair Golf Club Car Park; meet Belair Golf Club Car Park; meet by the side gate into Belair National Park.by the side gate into Belair National Park. Ph Chris on 0431 691 956 for more details.

 

 


Entry to the car park located before the Park Information Centre is free, via Upper Sturt RoadEntry to the car park located before the Park Information Centre is free, via Upper Sturt Road (click link to map).

The walking group is free, and a casual relatively informal arrangement. 

Cancer Voices Walking Group contact and information: Chris Christensen  0431 691 956

 

 

Get fit, stay fit, have fun!

Join the Cancer Voices Cycling group.  We ride every Sunday morning, starting at 8am at St Peters Girls School carpark off Hallett Rd, Stonyfell.  

We ride on road bikes up into the beautiful Adelaide Hills for about 2 hrs / about 50kms, at moderate pace.  

Even if you are not a cyclist, join us for coffee - usually at Taylor Blend Cafe on Hallett Road opposite Newland Oval, from about 10.30-11.30am.

For more details contact [email protected]

enzo-pete-brendon

 

 

Consumers & community - key partners in biobanking.  Poster and Rapid-fire presentation at the Australasian Biobanking Network Conference in Adelaide on 13-14th Oct 2016. See poster here.

 

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Contact

Cancer Voices South Australia

 

Ph.  0431 691 956 

 

PO Box 588, Kensington Park SA 5068