Community Noticeboard The independent Marshall Review
into the incorrect dosing of Cytarabine (once/day instead of twice/day) to ten patients with acute myeloid leukaemia at Royal Adelaide Hospital and Flinders Medical Centre has been released (pdf report here).
The Flinders Centre for Innovation in Cancer has developed a website: Work after Cancer http://workaftercancer.com.au
with information to support people with cancer (and/or their loved ones and carers) to return to work, along with advice or health professionals, employers and colleagues in the workplace. Know your options, rights and responsibilities.
Cancer Voices SA was an active partner throughout this project. Thank You to Monique, Chris, Julie, Don & Louise.
A new Canadian website also has useful information: Cancer and Work https://www.cancerandwork.ca/survivors/
October 2015. The South Australian Department for Health and Ageing is proposing the following changes to SA Cancer Reporting regulations:
- -Expanding the definition of cancer to be notified to include in situ (early stage) cancer and also benign brain tumours (no or uncertain potential to spread).
- -Changing the list of data to be notified to include stage at diagnosis and making occupation a non-mandatory item.
- -Allowing doctors to share diagnosis information with the Cancer Registry if requested.
Passed away 3 Feb 2014. Exceptional, inspirational leader and friend, sadly missed, but his legacy will live on.
"Ashleigh’s courage, commitment and determination will permanently be an inspiration to me.He will always be in my thoughts." Jeff, Cancer Voices SA member
The 2015 cancer Survivorship Conference was held at the Adelaide Convention Centre on 6-7 February 2015, and convened by Flinders Centre for Innovation in Cancer.
The inaugural Ashleigh Moore Oration was presented by Sally Crossing AM, for her outstanding contributions to clincal practice, research, policy and advocacy affecting cancer survivors. Listen to the Oration at https://www.youtube.com/watch?v=Ag6tSDuM3r4
Many of the oral presentation slides and posters are available on the Survivorship Conference website at http://www.survivorship2015.org/program-7/ and http://www.survivorship2015.org/poster-presentations/
Cancer Voices SA presentations at the Conference included:
“More than just telling my story” when cancer survivors become teachers: Julie Marker, Louise Bastian, Stephanie Newell, Kath Lockier
Why aren’t we ‘Measuring what matters to cancer survivors’ in Australia? abs# 59 (poster) Julie Marker, Agnes Vitry
Working together to ensure structured exercise is safe and more accessible for cancer survivors abs# 72(poster) Jason Schild, Tricia LaBella, Julie Marker
Research on cancer survivorship in Australia: current status, gaps and needs abs# 78 (poster) Agnes Vitry, Julie Marker
Sally Crossing OAM delivered the inaugural Ashleigh Moore Oration at the 2015 Survivorship Conference in Adelaide, convened by Flinders Centre for Innovation in Cancer.
The Oration was established to recognise the significant contribution of Ashleigh Moore OAM to the field of cancer survivorship in South Australia and beyond.
Nominations were called, for an individual or organisation in Australia who has made an outstanding contribution to the care of cancer survivors through contribution to clinical practice, research, policy and/or advocacy affecting cancer survivors.
View YouTube recording of Sally's oration at https://www.youtube.com/watch?v=Ag6tSDuM3r4
Cancer Voices compelling argument for 'No' to gene patents by changing the law at http://blogs.crikey.com.au/croakey/2013/07/04/cancer-patients-push-for-election-commitment-on-genetic-patenting/
MyHospitals website contains service and performance information for over 1,000 public and private hospitals.
It provides hospital profiles and comparable performance results for measures such as surgery waiting times and access to emergency departments by location or by hospital.
(http://www.myhospitals.gov.au/)
Adult Brain Cancer Support Group - coffee morning meeting held every 'last saturday in the month',
11am-12.30pm
at Adelaide South West Community Centre, 171 Sturt Street, Adelaide.
Life after cancer –stories building resilience ‘Cancer Insights’ talks on 1July 2014. This Flinders Centre for Innovation in Cancer evening was co-hosted and video recorded by Cancer Voices SA.
All 3 excellent presentations are now available online (click on the links below).
Narrative matters: exploring cancer stories online, Marie Ennis-O’Connor, health blogger & e-patient advocate.
Use of expressive writing in cancer, Prof Tracey Wade, Flinders University
You can make a fresh start – a writer’s perspective, David Chapple, SA Writers Centre
