Community Noticeboard
Seeking feedback from people who received neurotoxic chemotherapy (i.e. chemotherapy that can cause damage to the nerves) as a treatment for cancer. http://www.infocusstudy.org.au/survey/
A national survey of cancer survivors is aiming to investigate the impact of side effects of chemotherapy on the health, physical activity, and quality of life of Australian cancer survivors.
Check out some highlights of Cancer Voices SA activity during 2015 - in our 2015 Snapshots.
Thank you everyone who helped and participated.
Sign up and show your support for the Flinders Charter of Cancer Survivorship.
Anyone affected by cancer is invited to sign up. The Flinders Survivorship Charter is an outcome of the inaugural Flinders Centre for Innovation in Cancer (FCIC) Survivorship Conference . It brought together cancer clinicians, researchers, policy advisors and survivors from Australia and the world to share their insights into exciting developments in the field of cancer survivorship.
See the Survivorship Conference program and presentations that speakers are willing to share: Click here
The independent Marshall Review into the incorrect dosing of Cytarabine (once/day instead of twice/day) to ten patients with acute myeloid leukaemia at Royal Adelaide Hospital and Flinders Medical Centre has been released (pdf report here).
The Flinders Centre for Innovation in Cancer has developed a website: Work after Cancer http://workaftercancer.com.au
with information to support people with cancer (and/or their loved ones and carers) to return to work, along with advice or health professionals, employers and colleagues in the workplace. Know your options, rights and responsibilities, Cancer Voices SA was an active project partners and participants throughout this work, especially Monique, Chris, Julie, Don & Louise.
Supporting People with Cancer Return to Work in Disadvantaged Communities: This project is funded by the Cancer Australia ‘Supporting people with cancer’ Grant initiative.
A new Canadian website also has useful information: Cancer and Work https://www.cancerandwork.ca/survivors/
Rekindle provides tailored online sexual health information and activities for cancer survivors and their partners.
It is a randomised controlled trial involving cancer survivor and/or their partner randomised to one of 3 arms: Rekindle vs. Rekindle Plus (with 3 telephone support calls) vs. usual care/ control group. The control group participants are able to access the Rekindle program after a 'wait list' delay.
Rekindle is evidence-based and includes a range of resources to support patients to increase intimacy and achieve sexual function optimal for them.
Passed away 3 Feb 2014. Exceptional, inspirational leader and friend, sadly missed, but his legacy will live on.
"Ashleigh’s courage, commitment and determination will permanently be an inspiration to me.He will always be in my thoughts." Jeff, Cancer Voices SA member
The 2015 cancer Survivorship Conference was held at the Adelaide Convention Centre on 6-7 February 2015, and convened by Flinders Centre for Innovation in Cancer.
The inaugural Ashleigh Moore Oration was presented by Sally Crossing AM, for her outstanding contributions to clincal practice, research, policy and advocacy affecting cancer survivors. Listen to the Oration at https://www.youtube.com/watch?v=Ag6tSDuM3r4
Many of the oral presentation slides and posters are available on the Survivorship Conference website at http://www.survivorship2015.org/program-7/ and http://www.survivorship2015.org/poster-presentations/
Cancer Voices SA presentations at the Conference included:
“More than just telling my story” when cancer survivors become teachers: Julie Marker, Louise Bastian, Stephanie Newell, Kath Lockier
Why aren’t we ‘Measuring what matters to cancer survivors’ in Australia? abs# 59 (poster) Julie Marker, Agnes Vitry
Working together to ensure structured exercise is safe and more accessible for cancer survivors abs# 72(poster) Jason Schild, Tricia LaBella, Julie Marker
Research on cancer survivorship in Australia: current status, gaps and needs abs# 78 (poster) Agnes Vitry, Julie Marker
Sally Crossing OAM delivered the inaugural Ashleigh Moore Oration at the 2015 Survivorship Conference in Adelaide, convened by Flinders Centre for Innovation in Cancer.
The Oration was established to recognise the significant contribution of Ashleigh Moore OAM to the field of cancer survivorship in South Australia and beyond.
Nominations were called, for an individual or organisation in Australia who has made an outstanding contribution to the care of cancer survivors through contribution to clinical practice, research, policy and/or advocacy affecting cancer survivors.
View YouTube recording of Sally's oration at https://www.youtube.com/watch?v=Ag6tSDuM3r4
Cancer Voices compelling argument for 'No' to gene patents by changing the law at http://blogs.crikey.com.au/croakey/2013/07/04/cancer-patients-push-for-election-commitment-on-genetic-patenting/
