Peter Bui
Julie Marker
Julie is a 3 times metastatic colon cancer survivor, diagnosed initially in 2001 at 45 years of age, then again with liver secondaries in 2005 and 2006.
She joined the Cancer Voices South Australia (SA) Executive Team in 2007, became Deputy Chair in 2009, Acting Chair/Chair 2010 - Dec 2016.
Julie works hard to represent, respect and respond to the diversity of views of 'people affected by cancer', as well as assisting others to participate and use their own cancer experiences in a variety of ways.
Website links
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Cancer information and support
NEW! Children's Cancer
... Australian online cancer resource from Cancer Australia (Aug 2015)
Understanding Your Rights This useful booklet by the Cancer Council NSW sets out what patients can reasonably expect, both from health services and themselves as they undertake the cancer journey. Order a copy by ringing the Cancer Helpline in any state around Australia ph:131120.
iheard - Heard something about cancer and not sure if it's true? Check out the Cancer Council website iheard for answers.
Cancer Directory is a new website that provides the community and health professionals with a useful, comprehensive online directory of trusted Australian cancer resources. A website developed by the Cancer Council NSW.
Waltzing with Jack Dancer - a slow dance with cancer
Geoff Goodfellow is a renowned Adelaide poet who has battled Head and Neck Cancer. Photographer Randy Larcombe worked with Geoff Goodfellow to compile an exhibition of poetry and graphic photographs depicting his cancer journey.
The 'Waltzing with Jack Dancer' Exhibition was officially opened
- on 29 May 2009 at the Grenfell Centre, 25 Grenfell Street, Adelaide,
- by Hon Justice Christopher Kourakis
- after an introduction by Ashleigh Moore, Chair of Cancer Voices SA and himself a Head and Neck Cancer survivor.
The exhibition continued to 26 June 2009.
NOW! Revisit this amazing exhibition of poetry and photography ONLINE at Randy Larcombe Photographer, stories, jack dancer.
Geoff hopes to raise awareness in the community of the realities of cancer and treatment.
An interview and video preview to the Exhibition can be seen on the ABC TV program Stateline, and read the article 'Going the distance/ No surrender' in the Adelaide Advertiser Weekend magazine.
Read more about Geoff Goodfellow:
Double Take Geoff (58yrs) and his daughter Grace (16 yrs). Geoff: I wanted to provide Grace with opportunities I didn’t have. One thing I’ve learnt is that language is power..... Grace: He’s very complex. One minute he’s “happy Geoff” and the next minute he’s “angry Geoff”, but I think the whole experience with the cancer has mellowed him out…... 9 May 2008 | The Australian > Lifestyle > The Weekend Australian Magazine
Big hearts join forces for poet Geoff Goodfellow was diagnosed with throat cancer earlier this year, and has been struggling…
to keep up with medical bills.So a bunch of Geoff's mates, including Michael Abbott QC, Chris Kourakis QC… 5 Jul 2008 | Adelaide Now >
Head and Neck Cancer
Head and neck cancers encompass a diverse group of uncommon tumors that frequently are aggressive in their biologic behavior. Many patients with head and neck cancer have advanced disease at the time of diagnosis.
Head and neck cancer is about 3 times more common in men than women. Most patients are aged between 50 and 70 years old, but head and neck cancer does occur in younger people. There are more women and fewer smokers in the younger patient group.
Risk factors for head and neck cancer include tobacco and alcohol use, ultraviolet (UV) light exposure, viral infection (eg human papilloma virus), and environmental exposures.
In Australia, Head and Neck Cancers (HNC) account for about 3% of all cancers, with 2,700 people diagnosed per year (1940 males, 730 females). The average age at diagnosis is 63yrs. Almost 900 people die each year from HNC, (680 males, 210 women).
In South Australia (SA), 168 people (131 men and 37 women) were diagnosed with HNC in 2006 (the latest statistics available), and there were 52 deaths (38 men, 14 women). Head and Neck Cancers accounted for 2.0% of all cancers, and 1.5% of all cancer deaths in SA.
Approximately 100,000 people are diagnosed with cancer each year in Australia, and cancer is the cause of 40,000 deaths per year. In 2005, the five most common cancers were prostate cancer (16,349 cases), colorectal cancer (13,076), breast cancer (12,265), melanoma of the skin (10,684) and lung cancer (9,182). These five cancers accounted for over 61% of all cancer diagnoses.
For more information about head and neck cancer:
CancerNetwork
CancerHelp UK
The Oral Cancer Foundation
References for this article
CancerNetwork Head and Neck Tumours Chapter 4.
Cancer in Australia: an overview (2008)
Australian Cancer Incidence and Mortality Books: Head and Neck Cancer
South Australian Cancer Registry Report (2006) Table 100, p96
Online Social Networking
Twitter
Twitter is a social network that lets you post short messages up to 140 characters long. You can also receive messages from others by 'following' them.
View Cancer Voices SA tweets at: @CancerVoicesSA
Other Twitter sites that have cancer related tweets: @LIVESTRONG
If you're new to Twitter, here are some tips:
- Go to www.twitter.com and hit the Get Started - Join button. Enter your name, email address and a password and then press Create my account.
- To post a message, log in and the text box will open where you can type messages up to 140 characters long. Press update to post your latest missive to your followers, who will then see your message.
- When someone replies to your posting, their name will be displayed in the @name format.
- When you reply, it will be shown on your Twitter page as @yourname. For example, if you'd like to send us a reply type @CancerVoicesSA and then your message, which is known as a tweet.
- The panel on the right hand side of the Twitter page shows the tools that are available.
- Home shows recent tweets from other users that you're following.
- @Replies shows the responses others have made to your tweets. Direct messages shows messages that are only sent to you. Favorites is where you can save particular messages.
- If you see the letters RT, it means 'retweet' and someone is forwarding an original posting so that it can be read again. You may also see # in front of a word - this helps identify your tweet in a search.
(These tips have been adapted from Follow CHOICEAustralia on Twitter. CHOICE provides trusted information for Australian consumers).
Additional advice for beginners, to help you get started:
Twitter Etiquette | Twitter Guide
YouTube
YouTube is a video sharing website for viewing videos online, and registered users can upload and share videos.
View video clips about Cancer Voices SA activities at: YouTube - CancerVoicesSA
Some cancer related videos can be seen at:
Media
2013:
'Its OK to talk about it'. The Advertiser 25Feb2013. p43
Myriad of problems for cancer gene (podcast). Radio Adelaide, 20 May 2013
2012:
Speaking out for care. Advertiser Boomer Magazine (June 2012)
Cancer Services in the country
. ABC Regional Radio- with Annabelle Homer on Late Afternoons program (28June 2012)
Cancer survival lifts, treatment changes ABC TV 7.30 Report (14May2012)
2011:
CVSA's Ashleigh Moore interviews Chris Brewer (26 Jan 2011)
LIVESTRONG's Chris Brewer interviews Ashleigh Moore (21 Jan 2011)LIVESTRONG Blog
Lance's legacy in SA, as a cyclist and cancer survivor (20 Jan 2011) ABC TV 7.30 Report
2010:
Armstrong bike auction for Cancer Information Kiosk- Video interview
Interview with Cancer Voices SA (20 Jan 2010) LIVESTRONG Blog Riding for their lives (20 Jan 2010) ABC 7.30 Report Brush with a legend (Jan 2010) Eastern Courier Armstrong an inspiration to those with cancer (Jan 2010) ABC News
2009:
Cancer Voices SA cycling for cancer awareness: Livestrong and Cancer Voices in Australia TV: A Current Affair Ch9 Adelaide (Jan 09)
Armstrong inspires cancer sufferers (March 09) Australian Cyclist
Spreading the Cancer Message (March 09) Bicycling Australia
Chance for 7100 riders to ride like Lance Armstrong in Challenge Tour (23 Jan 09) - The Advertiser article and video
Cancer Voices SA team training( 18 Jan 09 ) - see ride photos
In Lance's Shadow ( 16 Jan 09 ) - Messenger Newspaper
2008:
Radiotherapy incident: Newspapers, TV news, ABC Stateline program, radio.
Chemotherapy dosing incident: Newspapers, radio.
CVSA cycling for cancer awareness: newspapers.
Media Releases:
Armstrong bike auction, funds for Information Kiosk at new Flinders Centre for Innovation in Cancer (Jun 2010)
CVSA Commitments to Global Cancer Campaign (23 July 09)
Members' Stories
We are gathering stories from Cancer Voices SA members, but in the meantime, you may be interested to read these stories:
Tell your cancer story (Cancer Council Victoria, Australia)
LIVESTRONG Survivors Stories
Your stories (Cancer Research UK)
Partners and Supporters
National:
Through Cancer Voices Australia we contribute to a national network of Cancer Voices:
Cancer Voices New South Wales
Cancer Voices Victoria
International:
Cancer Voices UK and Cancer Voices New Zealand
Each Cancer Voices is slightly different but we are united in giving a voice to those affected by cancer.
We are members and partners of the:
Health Consumers Alliance of South Australia
Consumers Health Forum Australia
Our supporters include:
Bendigo Bank
EFM Health Club - Stonyfell
Kain C + C Lawyers
West Creative Graphic Design
People's Choice Credit Union
Samuel James Homes
Cancer Council SA
T-Shirt City
PB Web Development
CancerVoices SA thanks all our supporters and in-kind contirbutions.
'Give cancer the boot'! Cancer Soccer Cup
Cancer Voices SA entered a team in this one day soccer carnival, the first Cancer Soccer Cup, held on Saturday 3rd of October 09, at Hackham, south of Adelaide.
Prostate Cancer
Prostate cancer is the most common cancer diagnosed in Australia and the second greatest cause of cancer deaths in men. The latest data shows that in 2010 almost 20,000 men will be diagnosed with prostate cancer. Tragically more than 3,300 men will die as a direct cause of prostate cancer. (Source: Australian Institute of Health and Welfare).
Objectives & Strategic Plan
Strategic Plan 2015-2020
Cancer Voices SA Strategic Plan 2015-2020
The plan was developed by the Executive Team and is based around feedback from members and the community.
Vision, Purpose, About us - Download Here and Flyer - Click Here
