Cancer Resources

 

A list of organisations who offer a whole range of services, support and resources on their websites.

 

Advocacy Tools

Cancer Australia- Cancer Learning - Consumer ParticipationConsumer Participation

Our CommunityOur Community’ provides useful toolkits of free online resources for community organisations (Australian)

Community Advocacy GuidelinesCommunity Advocacy Guidelines (Health Consumers' Council (WA)Health Consumers' Council (WA))

A Guide to Bicycle AdvocacyA Guide to Bicycle Advocacy has useful tips on how to campaign governments at all levels about issues concerning cyclists. These tips are also very applicable to cancer advocacy.

VolresourceVolresource Information for voluntary and community organisations (UK)

Partnerships Online Partnerships Online The guide to effective participation (UK)

Cancer Control: knowledge into actionCancer Control: knowledge into action (WHO)

Consumer resources from Cancer AustraliaConsumer resources from Cancer Australia

Consumer participation guide

Consumer training and mentoring guide

Cancer support groups: A guide to setting up peer facilitated supportsCancer support groups: Skills resource for peer facilitators

Links to additional resources can be found in the Cancer Voices LibraryLibrary

Best practice cancer care

Multidisciplinary care is a collaborative approach to treatment planning and ongoing care throughout the treatment pathway. Multidisciplinary care aims to ensure that members of the treatment and care team can discuss all relevant aspects of a cancer patient’s physical and psychosocial needs along with other factors impacting upon the patient’s care.

Achieving best practice cancer care, A guide for implementing multidisciplinary care Achieving best practice cancer care, A guide for implementing multidisciplinary care (Victorian Government Cancer Initiative

Multidisciplinary cancer careMultidisciplinary cancer care (National Breast and Ovarian Cancer Centre)

The Cancer Learning online hubCancer Learning online hub is an initiative of Cancer AustraliaCancer Australia and aims to:

consolidate the enormous variety of evidence-based learning activities, resources and information in cancer care available across Australia and overseas

provide a first port of call for health professionals, organisations and cancer networks who wish to undertake, build or plan professional development programs and activities in cancer care

enable resources and information to be shared by cancer care providers across Australia.

“Find” cancer learning activities, for example

Coordination of CareCoordination of Care

Multidisciplinary CareMultidisciplinary Care

Supportive CareSupportive Care

Adolescent & Young AdultAdolescent & Young Adult

CALDCALD

Clinical Practice ImprovementClinical Practice Improvement

GeriatricGeriatric

IndigenousIndigenous

PaediatricPaediatric

Palliative CarePalliative Care

Primary CarePrimary CareReferral ToolkitReferral Toolkit

Work/Life BalanceWork/Life Balance

Cancer Screening Programs

Australian cancer screening programscancer screening programs

Making sense of screeningMaking sense of screening

Screening and early detection of cancerScreening and early detection of cancer (World Health Organisation)

General considerations for cancer screeningGeneral considerations for cancer screening (World Health Organisation)

Cancer Organisations in Australia

Cancer AustraliaCancer Australia Cancer Australia is a national government agency, working to reduce the impact of cancer on all Australians. It aims to work in partnership with consumers, health professionals, cancer organisations, researchers and governments, to improve outcomes for all people affected by cancer and particularly for those people whose survival rates or cancer experiences are poorer. This includes Aboriginal and Torres Strait Islander peoples, people living in rural and regional areas, people from culturally and linguistically diverse backgrounds and people who are socio-economically disadvantaged.

The Cancer Council AustraliaThe Cancer Council Australia is Australia's peak national non-government cancer control organisation. The Cancer Council Australia advises the Australian Government and other bodies on practices and policies to help prevent, detect and treat cancer.

Cancer Statistics

The Cancer Council SAThe Cancer Council SA has reports and links to the SA Cancer RegistrySA Cancer Registry, national and international resources. (Cancer Council Victoria Cancer Registry dataVictoria Cancer Registry data)

Cancer reportsCancer reports from the Australian Institute of Health and Welfare (AIHW)

Cancer in Australia: an overview, 2010Cancer in Australia: an overview, 2010, shows that over 108,000 new cancer cases were diagnosed in 2007 (excluding most non-melanoma skin cancers). Click here for the Media release, Media release, Full reportFull report ,  Summary reportSummary report . (16 Dec 2010)

Australia's Health 2010Australia's Health 2010 (published Jun 2010), CancerCancer chapter

Cancer in Australia: an overview, 2008Cancer in Australia: an overview, 2008 (published Dec 2008)

Cancer in Australia 2006Cancer in Australia 2006 Report (published July 2007)

Australian Cancer Incidence and Mortality BooksAustralian Cancer Incidence and Mortality Books (current data)

UK Cancer ResearchUK Cancer Research CancerStats section contains the latest cancer statistics and information on the causes, diagnosis, treatment, screening and molecular biology and genetics of cancer.

US National Cancer Institute Cancer StatisticsUS National Cancer Institute Cancer Statistics for ‘Finding cancer statistics’ and ‘Understanding Cancer Statistics’.

Cancer WorldwideCancer Worldwide - the global picture

Haematological malignancy research networkHaematological malignancy research network - UK

Cancer Initiatives, Policy and Planning

LIVESTRONG Global Cancer CampaignGlobal Cancer Campaign

'Go PublicGo Public' Global Community Conversation on Cancer Control

World Cancer CampaignWorld Cancer Campaign, International Union Against Cancer (UICC)

World Cancer DeclarationWorld Cancer Declaration (2008) - a plan of actiona plan of action to help substantially reduce the global cancer burden by 2020 and increase cancer's visibility on the international political agenda.

Charter of Paris 2000Charter of Paris 2000 : World Cancer Campaign, International Union against Cancer (UICC)

Statewide cancer control plan 2006 - 2009Statewide cancer control plan 2006 - 2009 Developed in parnership by the South Australian Department of Health and Cancer Council South Australia

Australian National Services Improvement Framework for CancerAustralian National Services Improvement Framework for Cancer (NISIF), 2005 (Chap 4 Treatment and Support during Active Treatment (PDF 102 KB), Chap 5 Management and Support after and between Active Treatment (PDF 51 KB); Related document - DRAFT Cancer Professional Development FrameworkDRAFT Cancer Professional Development Framework

Optimising Cancer Care in AustraliaOptimising Cancer Care in Australia is a consultative report prepared in 2003 by the Clinical Oncological Society of Australia, Cancer Council Australia and the National Cancer Control Initiative outlining key reforms required to ensure optimal treatment for cancer patients.

Challenges in Open DisclosureChallenges in Open Disclosure: Health Consumer Alliance SA 'Voice' Newsletter, Autumn 2009. "'consumers ....significant players in changing clinical culture...", "We must learn to ask questions,...about the appropriateness and effectiveness of the treatments offered to us...".

National Health and Hospitals Reform CommissionNational Health and Hospitals Reform Commission was established (Feb 08) to develop a long-term health reform plan for a modern Australia.Beyond the Blame Game: Accountability and performance benchmarks for the next Australian Health Care AgreementsBeyond the Blame Game: Accountability and performance benchmarks for the next Australian Health Care Agreements (2008), and Interim Report –A Healthier Future for All AustraliansA Healthier Future for All Australians (2009) which contains proposed reform directions.
A Healthier Future for All AustraliansA Healthier Future for All Australians, NHHRC final report 27 July 2009
(Background from 'The history of public hospitals in Australia -- where did our public hospital system come from and why is it in crisis?The history of public hospitals in Australia -- where did our public hospital system come from and why is it in crisis?' on ABC Radio National, March 2009)

Australia: the healthiest country by 2020Australia: the healthiest country by 2020 - National Preventative Health Taskforce (2008, Discussion Paper)

Towards a National Primary Health Care StrategyTowards a National Primary Health Care Strategy: A Discussion Paper from the Australian Government (2008)

US National Action Plan for Cancer Survivorship: Advancing Public Health StrategiesUS National Action Plan for Cancer Survivorship: Advancing Public Health Strategies.  Jointly produced by LIVESTRONG/Lance Armstrong Foundation (LAF) and US Centre for Disease Control (CDC). "Survive cancer and liveSurvive cancer and live" is a brochure describing the US National Action Plan for Cancer Survivorship.

From Cancer Patient to Cancer Survivor: Lost in Transition (2005) From Cancer Patient to Cancer Survivor: Lost in Transition (2005)
This report of a committee established at the Institute of Medicine (IOM) of the US National Academies examines the range of medical and psychosocial issues faced by cancer survivors and makes recommendations to improve their health care and quality of life. The report focuses on survivors of adult cancer during the phase of care that follows primary treatment. A previous IOM reports addressed the needs of childhood cancer survivors (IOM, 2003).

 

Contact

Cancer Voices South Australia

 

Ph.  0431 691 956 

 

PO Box 588, Kensington Park SA 5068