Cancer Voices Achievements in 2012

 Presentations

• Health Consumers Alliance, Adelaide (22 Oct 2012) AGM- panel discussion on Patient Centred Care.

  Health Consumers Alliance, Adelaide (11 Oct 2012) Advocacy Training - the voice of an experienced advocate. 

  Australia Lung Cancer Conference, Adelaide.  (23 Aug 2012)  'Living with lung cancer - a personal perspective on the myths, misperceptions and stigma.  Ashleigh Moore'.

  Radiotherapy Conference, Adelaide. (11 Aug 2012)    Ashleigh Moore gave 2 presentations from the patient's perspective about radiotherapy.

  Prostate Cancer Support Group, Adelaide (16 July 2011) See a short summary in their newsletter  pg 5

  SA Psycho-Oncology Research Group (13 July 2012) 

  Hearing before the Senate Inquiry into Palliative Care in Australia (July 2012)

  Cancer Voices SA submission(#56 PDF) and Answers to Questions on Notice re: the Senate Inquiry into Palliative Care in Australia 

  11 personal stories in tutorial group series to medical students, Adelaide Uni (Mar-May 2012)

  Leukaemia Foundation Support Group, Reynella (Mar 12)

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• Events organized by CVSA

• LIVESTRONG Day Ride.  7 Oct 2012. About 200 cyclists participated in this free community ride of 67km, 35km or 20km. See photos at Flickr
• Radiotherapy - facts and future.  Dr Eva Bezak  25July 2012.  Hear Eva's presentation (CvsaradiationPresentation.mp3) here. Thank you to Ian Fisk.
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Forums/Meetings/Workshops attended:

• SA-NT Data Linkage, Health Consumers Alliance, 22 Nov 2012
• New insights into Men's Health, Centre for Men's Health, 16 Nov 2012
• Clinical Oncology Society Australia - International Psycho-Oncology Society Conference, Brisbane, 13-15 Nov 2012
• Consumer Forum - Clinical Oncology Society Australia Conference, Brisbane 12 Nov 2012
• Australian Lung Foundation, Lung Cancer & Mesothelioma Consumer & Carers Forum.  Adelaide, 22 Aug 2012
• PoCoG/PC4 National Joint Community Advisory Group training workshop. Sydney, 10-11 Aug 2012
• Building Bridges Forum, Fleurieu Cancer Network, Christie Downs.  19 July 2012
• SA Health & Medical Research Institute (SAHMRI) Cancer Research Collaborative meeting 19 July 2012
• AIHW Cancer Data Monitoring Advisory Group meeting.  Canberra, 25 Jun 2012
• PC4 (Primary Care Cancer Collaborative Clinical Trials Group) - Clinical Trials (Advanced) workshop. Sydney, 2 May 2012
• SA Health and Medical Research Institute - launch. Adelaide, 3 Feb 2012
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Media:

Speaking out for care.  Advertiser Boomer Magazine (June 2012)

Cancer Services in the country.  ABC Regional Radio- with Annabelle Homer on Late Afternoons program (28June 2012)

Cancer survival lifts, treatment changes  ABC TV 7.30 Report (14May2012)

Representation on:

• Flinders Centre for Innovation in Cancer - Cancer Survivorship Conference - Consumer Advisory Committee

SA Cancer Clinical Network (CCN) Steering committee and subcommittees/working groups:

Head and Neck Cancer Pathway working group

Complementary Therapies working group (chaired by CVSA Exec)

   Flinders Centre for Innovation in Cancer - Consumer input to design, 2013 Survivorship Conference - Survivor Advisory Group

• SA eHealth Consumer Reference Group

- Consumers eHealth Alliance (CEHA) Australia

- Cancer Voices Australia (CVA) Board

• Cancer Australia - Consumer Engagement Framework – Consumer Reference Group

- Cancer Australia Lung Cancer –Models of Care Steering Committee

-MultiDisciplinary Team Care Project Advisory Group

• CareSearch - Palliative Care National Advisory Group

• PoCoG/PC4 National Joint Consumer Advisory Group

   AIHW Cancer Data Monitoring Advisory Group

   SA Cancer Research Collaborative

   SA Psycho-oncology Research Group

  Cancer Directory website Advisory Group

Newsletters (&additional ebulletins)

November 2012 eBulletin

October 2012 eBulletin

July 2012 eBulletin 

February 2012 eBulletin 

Key Projects

Cancer Conversations in Aboriginal Communities (Cancer Australia Consumer Networks grant)

Online 2way communication for cancer advocacy – (Cancer Australia Consumer Networks grant)

CVSA 2011-2013 Business Plan

Cycling team

Monthly training rides and weekly group rides

Participation in Tour Down Under, Ride Like Crazy,  Grand Slam Series

Interactive website www.cvsacyclingteam.org.au