April - Cancer Voices Skin Cancer Survey - to contribute results to Skin Cancer National Senate Inquiry
April - 'Patients as Teachers' personal impacts of cancer, presentation to UniSA palliative and supportive care nursing students; Arthur & Kathie Seager, Tricia LaBella, Julie Marker
April - National Skin Cancer Senate Inquiry - Cancer Voices SA submission and attended hearing as a witness (Julie Marker representing Cancer Voices SA).
April - Patients access to pathology & imaging results: met with Ken Barr, Head SA Health Pathology & Imaging. Julie Marker & Eric Browne, Cancer Voices SA; Michael Cousins-Health Consumers Alliance SA
May - Response to: Senate inquiry into out-of-pocket costs in Australian Healthcare; contributed to Cancer Voices Australia submission.
May - Response to: Consensus Statement for the Management of Laboratory Results that Pose High Risk to Patients and Require Timely Communication. Cancer Voices SA submission.
June - Noarlunga Cancer Information Forum (Speakers Dr Gwyn Jolley, Julie Marker, Gill Cancer Council SA)
July - Cancer conversations in Aboriginal communities - Julie Marker presentation to SAHMRI Aboriginal Cancer Reference Group
July - Reducing the Gap between Research and Policy - forum, Speakers Stephanie Miller HCA, Tim Agius, Julie Marker
Aug- SA PoCoG Psycho-Oncology Research Group - 'Survivors as teachers' session with Scott, Kath and daughter Annie presenting their experience.
Sep - Oncology post grad nurses - 'Survivors as teachers' session with Monique presenting her cancer experience story.
Oct - FCIC Cancer Data - presentations by CVSA's Agnes Vitry 'Low hanging fruit in survivorship research' & Julie Marker: Measuring what matters to survivors
Nov Lyell McEwin Cancer Centre - 'Survivors as teachers' - Louise & Tricia presenting their experience to rural oncology centre nurses by videoconferencing
Nov- Transforming Health - CVSA submission
Nov- Cancer and Chronic Disease Think-Tank organised by Flinders Centre for Innovation in Cancer, presenting consumer perspective, Steph Newell, Agnes Vitry & Julie Marker
Projects supported by Cancer Voices SA members
January-Dec - Cancer Voices members meet to a discuss issues around 'return to work' and cancer; Chris Christensen, Agnes Vitry, Monique Bareham, Julie Marker & guests Dr Vicky Knott, Marie Ennis
July - Life after cancer - stories building resilience, FCIC Cancer Insights evening in collaboration with Cancer Voices SA -
Oct - Return to Work after Cancer project commences
Active participation by Cancer Voices SA reps
January - Southern Fleurieu & Kangaroo Island Medicare Local met with Cancer Voices Julie Marker, Eric Browne, Agnes Vitry, Chris Yiallouros
February, Sep, Dec - SA Cancer Services- Strategy Committee meeting (Julie Marker & Don Piro, Cancer Voices, consumer reps on this committee formerly known as the SA Cancer Clinical Network)
June - SA Cancer Services -2016-2020 Cancer Control Plan meeting (Cancer Voices - Don Piro, Scott Nussey, Julie Marker)
February - Dec: planning for 2015 FCIC Survivorship Conference begins (to be held 6-7 Feb 2015 at Adelaide Convention Centre) with Cancer Voices consumer reps involved
March, Aug, Oct, Nov - SA Health & Medical Research Institute (SAHMRI) Cancer Collaborative meeting (Julie Marker, Cancer Voices, consumer rep on this committee) See photos inside SAHMRI at https://www.flickr.com/photos/cancervoicessa/sets/72157644338213541/
April - Attended 'Managing disparieties in cancer care: what we can learn from international initiatives? Prof Greta Cummings visiting Adelaide Uni School of Nursing.
April - CareSearch Palliative Care Knowledge Network, National Advisory Group meeting. (Julie Marker, Cancer Voices, consumer rep on this committee)
April - SA Psycho-Oncology Research Group meeting (Cancer Voices Julie Marker, Scott Nussey, Marie Ennis contributed consumer perspective feedback to 5 PhD student presentations)
May - Participated in Brain Cancer Forum organised by Adult Brain Cancer Support Assoc, Cancer Council SA, Brain Tumour Alliance Aust, with Cure Brain Cancer Foundation webinar - view here.
May, Oct - FCIC Survivorship Services Planning meeting. Cancer Voices SA participants Scott Nussey, Chris Yiallouros, Chris Christensen, Julie Marker, Marie Ennis
May – meeting with researchers regarding consumer involvement (Cancer Voices Agnes Vitry, Ross Pagram, Julie Marker)
May - AGITG Consumer Advisory Panel (CAP) meeting. AGITG - Australasian GastroIntestinal Trials Group. Cancer Clinical Trials Groups provide another way to use your cancer experience. There are 14 Cancer Australia clinical trials groups. AGITG arranged a visit to the new LifeHouse Cancer Centre in Sydney. See LifeHouse Cancer Centre photos by Julie Marker.
July - FCIC Cancer Survivorship Data forum (CVSA participants Chris Christensen, Monique Bareham, Stephanie Newell, Scott Nussey, Eric Browne, Martin Timmins, Julie Marker)
July - Health economics in cancer research Workshop (Julie Marker, Don Piro participated as members of the Joint Community Advisory Committee of the Psycho-Oncology Clinical Trial Group and Primary Care Cancer Collaborative Clinical Trials Group PoCoG/PC4 JCAG
Oct - Health Consumers Alliance SA & International Centre for Allied Health Evidence ran 3 consumer Journal Club sessions
Oct- Bellberry workshop- Challenges of Crossover in cancer clinical trials - 7 CVSA members participated, Chris, Martin, Malcolm & Beverly, Caroline, Rincy & Julie
Nov- SA PoCoG research interest group meeting
Nov- Transforming Health information session organised by Health Consumers Alliance SA
Nov -Australian Cancer Consumer Network - launch in Canberra, Parliament House
Nov- Transforming Health Summit (CVSA by invitation)
