Advocacy Tools
Cancer Australia- Cancer Learning - Consumer Participation
‘Our Community’ provides useful toolkits of free online resources for community organisations (Australian)
Community Advocacy Guidelines (Health Consumers' Council (WA))
A Guide to Bicycle Advocacy has useful tips on how to campaign governments at all levels about issues concerning cyclists. These tips are also very applicable to cancer advocacy.
Volresource Information for voluntary and community organisations (UK)
Partnerships Online The guide to effective participation (UK)
Cancer Control: knowledge into action (WHO)
Consumer resources from Cancer Australia
Consumer participation guide
Consumer training and mentoring guide
Cancer support groups: A guide to setting up peer facilitated supportsCancer support groups: Skills resource for peer facilitators
Links to additional resources can be found in the Cancer Voices Library
Multidisciplinary care is a collaborative approach to treatment planning and ongoing care throughout the treatment pathway. Multidisciplinary care aims to ensure that members of the treatment and care team can discuss all relevant aspects of a cancer patient’s physical and psychosocial needs along with other factors impacting upon the patient’s care.
Achieving best practice cancer care, A guide for implementing multidisciplinary care (Victorian Government Cancer Initiative
Multidisciplinary cancer care (National Breast and Ovarian Cancer Centre)
The Cancer Learning online hub is an initiative of Cancer Australia and aims to:
consolidate the enormous variety of evidence-based learning activities, resources and information in cancer care available across Australia and overseas
provide a first port of call for health professionals, organisations and cancer networks who wish to undertake, build or plan professional development programs and activities in cancer care
enable resources and information to be shared by cancer care providers across Australia.
“Find” cancer learning activities, for example
Primary Care , Referral Toolkit
Australian cancer screening programs
Screening and early detection of cancer (World Health Organisation)
General considerations for cancer screening (World Health Organisation)
Cancer Organisations in Australia
Cancer Australia Cancer Australia is a national government agency, working to reduce the impact of cancer on all Australians. It aims to work in partnership with consumers, health professionals, cancer organisations, researchers and governments, to improve outcomes for all people affected by cancer and particularly for those people whose survival rates or cancer experiences are poorer. This includes Aboriginal and Torres Strait Islander peoples, people living in rural and regional areas, people from culturally and linguistically diverse backgrounds and people who are socio-economically disadvantaged.
The Cancer Council Australia is Australia's peak national non-government cancer control organisation. The Cancer Council Australia advises the Australian Government and other bodies on practices and policies to help prevent, detect and treat cancer.
Cancer Statistics
The Cancer Council SA has reports and links to the SA Cancer Registry, national and international resources. (Cancer Council Victoria Cancer Registry data)
Cancer reports from the Australian Institute of Health and Welfare (AIHW)
Cancer in Australia: an overview, 2010, shows that over 108,000 new cancer cases were diagnosed in 2007 (excluding most non-melanoma skin cancers). Click here for the Media release, Full report , Summary report . (16 Dec 2010)
Australia's Health 2010 (published Jun 2010), Cancer chapter
Cancer in Australia: an overview, 2008 (published Dec 2008)
Cancer in Australia 2006 Report (published July 2007)
Australian Cancer Incidence and Mortality Books (current data)
UK Cancer Research CancerStats section contains the latest cancer statistics and information on the causes, diagnosis, treatment, screening and molecular biology and genetics of cancer.
US National Cancer Institute Cancer Statistics for ‘Finding cancer statistics’ and ‘Understanding Cancer Statistics’.
Cancer Worldwide - the global picture
Haematological malignancy research network - UK
Cancer Initiatives, Policy and Planning
LIVESTRONG Global Cancer Campaign
'Go Public' Global Community Conversation on Cancer Control
World Cancer Campaign, International Union Against Cancer (UICC)
World Cancer Declaration (2008) - a plan of action to help substantially reduce the global cancer burden by 2020 and increase cancer's visibility on the international political agenda.
Charter of Paris 2000 : World Cancer Campaign, International Union against Cancer (UICC)
Statewide cancer control plan 2006 - 2009 Developed in parnership by the South Australian Department of Health and Cancer Council South Australia
Australian National Services Improvement Framework for Cancer (NISIF), 2005 (Chap 4 Treatment and Support during Active Treatment (PDF 102 KB), Chap 5 Management and Support after and between Active Treatment (PDF 51 KB); Related document - DRAFT Cancer Professional Development Framework
Optimising Cancer Care in Australia is a consultative report prepared in 2003 by the Clinical Oncological Society of Australia, Cancer Council Australia and the National Cancer Control Initiative outlining key reforms required to ensure optimal treatment for cancer patients.
Challenges in Open Disclosure: Health Consumer Alliance SA 'Voice' Newsletter, Autumn 2009. "'consumers ....significant players in changing clinical culture...", "We must learn to ask questions,...about the appropriateness and effectiveness of the treatments offered to us...".
National Health and Hospitals Reform Commission was established (Feb 08) to develop a long-term health reform plan for a modern Australia.Beyond the Blame Game: Accountability and performance benchmarks for the next Australian Health Care Agreements (2008), and Interim Report –A Healthier Future for All Australians (2009) which contains proposed reform directions.
A Healthier Future for All Australians, NHHRC final report 27 July 2009
(Background from 'The history of public hospitals in Australia -- where did our public hospital system come from and why is it in crisis?' on ABC Radio National, March 2009)
Australia: the healthiest country by 2020 - National Preventative Health Taskforce (2008, Discussion Paper)
Towards a National Primary Health Care Strategy: A Discussion Paper from the Australian Government (2008)
US National Action Plan for Cancer Survivorship: Advancing Public Health Strategies. Jointly produced by LIVESTRONG/Lance Armstrong Foundation (LAF) and US Centre for Disease Control (CDC). "Survive cancer and live" is a brochure describing the US National Action Plan for Cancer Survivorship.
From Cancer Patient to Cancer Survivor: Lost in Transition (2005)
This report of a committee established at the Institute of Medicine (IOM) of the US National Academies examines the range of medical and psychosocial issues faced by cancer survivors and makes recommendations to improve their health care and quality of life. The report focuses on survivors of adult cancer during the phase of care that follows primary treatment. A previous IOM reports addressed the needs of childhood cancer survivors (IOM, 2003).
