Our Impact and Publications

The following publications are in order of most recent.

Articles

Zannettino L, Thompson J, Marker J, Agius S. 2016. ‘Raising Awareness of Undergraduate Nurses to the Psychosocial Impact of Living With Cancer: consumer engagement in teaching initiative,’ APJON, 3.2: 121-124.

Marker, J. 2015. ‘Recovering from and surviving cancer: a consumer perspective,’ Cancer Forum 39.2: 76-79.

Posters at Conferences

Johnstone, D. 2025. COSA Survivorship. ‘Cancer Stories in Education: Exploring a cancer-survivor informed approach in the use of oral narratives in tertiary healthcare student education.’ Read here.

Johnstone, D. 2025. COSA Survivorship. ‘A Cancer-Survivor informed approach to healthcare student education: the impact of in-person versus digital storytelling on self-reported empathy in healthcare students’, and won Best Poster Award. Read here.

Meehan, D., Edwards, S., Kriel, S., McAtamney, A. & Varlow, M. 2025. COSA Survivorship. ‘From consultation to collaboration: Strengthening cancer policy through lived experiences. Read here.

Johnstone, D. 2024. COSA ASM. ‘Reflective and Reflexive practices in tertiary healthcare students following cancer patient engagement: A scoping review.’

Johnstone, D. 2024. COSA ASM. ‘Patient-Teachers: A cancer-consumer informed approach to using their stories in the education of healthcare students.’

Johnstone, D. & Edwards, S. 2023. COSA Survivorship. ‘Continuity Through Covid for Survivors as Teachers.’

Bedford, V., Short, M., Crabb, S. 2021.Survivorship Conference. ‘What tools measure Quality of Life in paediatric cancer patients? A scoping review.’ 

Ramsey, I., Marker, J., Corsini, N., Hutchinson, A., Eckert, 2021. Survivorship Conference. ‘Consumer involvement in and impact on the development of a core outcome set for cancer survivorship.’

Thomas, J., Marker, J. & Ostrof, C. 2021. Survivorship Conference. ‘Survivors as teachers, helping students to thrive despite COVID.’

Wall, B. & Marker, J. 2019. COSA ASM, ‘Consumer Driven Priority setting – a practical example: Are iron deficiency and peripheral neruopathy from oxaliplatin linked?’ Read here.

Christensen, C. & Marker, J. 2019. Survivorship Conference. ‘Evolution and Revolution – 10+ years of cancer advocacy.’ Read here.

Christensen, C. & Marker, J. 2018. Victorian Survivorship Conference. ‘Survivors in the survivorship equation: survivor evidence + survivor views of best practice = better outcomes.’ Read here.

Marker, J., Kay, D. & Mumford, J. 2016. Australasian Biospecimen Network Association Annual Conference. ‘Consumers and communities – key partners in biobanking.’

Marker, J. & Vitry, A. 2015. Surviorship Conference. ‘Why aren’t we ‘Measuring what matters to cancer survivors’ in Australia?’ Read here. 

Schild, J., LaBella, T. & Marker, J. 2015. Surviorship Conference. ‘Working together to ensure structured exercise is safe and more accessible for cancer survivors.’ Read here. 

Vitry, A. & Marker J. 2015. Survivorship Conference. ‘Research on cancer survivorship in Australia: current status, gaps and needs.’ Read here. 

Thomas, J., Vitry, A. & Marker, J. 2013. COSA ASM. ‘Students perceptions of a consumer-led discussion group format to improve awareness of the patient perspective.’ Read here.

Oakes, C. & Eliott, J. 2013. Survivorship Conference. ‘Building yourself to better cope – a case study of a cycling team led by cancer survivors. Read here.

Conference presentations

Johnstone, D. 2025. Australian Society for Medical Imaging and Radiation Therapy (ASMIRT) 19th National Conference. 

Edwards, S. 2024. COSA ASM. Plenary session: Not one size fits all: protecting all people in cancer care, ‘Disability and cancer care – we can do both.’ Watch here.

Edwards, S. 2022. National Particle Therapy Symposium. ‘What do consumers want? Consumer engagement in research and clinical operations.’ Watch here.

Marker, J. 2021. Survivorship Conference, Plenary session: Neurotoxicity and neuropathy, ‘Finding my feet.’

Marker, J. 2021. Survivorship Conference, Ashleigh Moore Aware Oration, ‘Survivors and leadership reimagined’’

Marker, J. 2019. COSA ASM.  ‘What is needed to ensure optimal care and outcomes for older people with cancer in Australia.’

Nadagoudar, G. 2019. COSA ASM. ‘CALLED OUT: Exploring inequalities and improvements for CALD patient access to cancer clinical trials.’

Seager, K & Coan, C. 2015. UniSA Palliative and Supportive Care Nursing Forum, ‘Survivors as Teachers’ presentations

Marker, J., Bastian, L., Newell, S. & Lockier, K. 2015. Surviorship Conference. ‘More than just telling my story” when cancer survivors become teachers’

Newspaper, TV

  • Ovarian cancer awareness (Feb 2019) Chris Christensen
  • Cancer study to focus on ‘tsunami of survivors’ Karen van Gorp, Julie Marker  World Cancer Day 4 Feb 2017. ABC News. Read here.

Videos – see our YouTube channel

Reports:

  • ‘Walked the walk to talk the talk: yarning about cancer’ (2011) Ashleigh Moore, Julie Marker. Watch here.
  • ‘Radiotherapy benchmarks for cancer treatments, from the consumers perspective’ (2008) Ashleigh Moore, Julie Marker. Watch here. 
  • ‘Complementary therapies for cancer care in Australia and overseas – background paper’ (2008)  Ashleigh Moore, Julie Marker. Watch here.