Leadership & Action

Cancer Voices SA has been actively involved in a range of projects and activities since our inception in 2007.

We aim to be representative, responsive and respectful of the diversity of our grassroot members background and experiences; we try hard to hear those views.

We welcome members to get involved, provide feedback and insights into issues of concern, attend our events and activities and participate as representatives on behalf of Cancer Voices SA

Advisors on cancer services and policy committees

Our representatives have contributed to development of cancer care pathways, guidelines and policies for many state and national initiatives including:

  • South Australian Cancer Clinical Network: SA Health
  • SA Pathology – consumer advisor
  • South Australian Cancer Research Collaborative
  • National Framework for Consumer Involvement in Cancer Control
  • Cancer Australia national Lung Cancer program Advisory Group
  • Australian Institute of Health and Welfare (AIHW) – Cancer Data Monitoring Advisory Group
  • CareSearch Palliative Care Knowledge Network – National Advisory Group
  • Psycho-Oncology collaborative trials group (PoCoG)- Consumer Advisory Group
  • Primary Care Collaborative Cancer Clinical Trials Group (PC4) Consumer Advisory Group.
  • Australasian GastroIntestinal Trials Group (AGITG) Consumer Advisory Panel
  • Survivorship Conferences – planning committees

If you wish to be involved then register to join.

Leadership & Action on issues of concern

Treatment errors – constructive actions

  • 2008 Radiotherapy underdosing, 800+ patients
  • 2008 chemotherapy overdosing with Etoposide,
  • 2015 chemotherapy underdosing – 10 patients with Acute Myeloid Leukaemia AML,
  • 2016 Prostate Specific Antigen PSA reporting errors,

     

Highlighting survivorship issues –

  • What matters to cancer survivors

Consumer Engagement

Walk/n/talk with cancer researchers

Reducing the gaps between Research-Policy-Practice: Cancer Voices SA was the consumer partner in this initiative, 2014-2016

  • Consumers Included (a Cancer Voices Australia initiative – this logo is  awarded for conferences and events that have meaningful consumer engagement embedded in the planning and delivery).
    consumers included logo

Current Activities

  • Sustain and increase our Education and Wellness programs

  • Improve information and communication about cancer to raise awareness of emerging issues at the local, state and national levels

  • Advocate to improve cancer quality and safety

  • Increase consumer involvement in the development, implementation and review of South Australia’s Cancer Services

  • Advocate for the coordination of the care of children and young people living with cancer

  • Increase consumer involvement in cancer research projects and participation in clinical trials

  • Increase our partnerships with policymakers, cancer health professionals and cancer researchers

 

Achievements

About Advocacy

Cancer Voices advocates for system change, tackling common concerns for people affected by cancer.

Get involved – join our advocacy group or contact info@cancervoicessa.org.au