Leadership & Action
Cancer Voices SA has been actively involved in a range of projects and activities since our inception in 2007.
We aim to be representative, responsive and respectful of the diversity of our grassroot members background and experiences; we try hard to hear those views.
We welcome members to get involved, provide feedback and insights into issues of concern, attend our events and activities and participate as representatives on behalf of Cancer Voices SA
Advisors on cancer services and policy committees
Our representatives have contributed to development of cancer care pathways, guidelines and policies for many state and national initiatives including:
- South Australian Cancer Clinical Network: SA Health
- SA Pathology – consumer advisor
- South Australian Cancer Research Collaborative
- National Framework for Consumer Involvement in Cancer Control
- Cancer Australia national Lung Cancer program Advisory Group
- Australian Institute of Health and Welfare (AIHW) – Cancer Data Monitoring Advisory Group
- CareSearch Palliative Care Knowledge Network – National Advisory Group
- Psycho-Oncology collaborative trials group (PoCoG)- Consumer Advisory Group
- Primary Care Collaborative Cancer Clinical Trials Group (PC4) Consumer Advisory Group.
- Australasian GastroIntestinal Trials Group (AGITG) Consumer Advisory Panel
- Survivorship Conferences – planning committees
Leadership & Action on issues of concern
Treatment errors – constructive actions
- 2008 Radiotherapy underdosing, 800+ patients
- 2008 chemotherapy overdosing with Etoposide,
- 2015 chemotherapy underdosing – 10 patients with Acute Myeloid Leukaemia AML,
- 2016 Prostate Specific Antigen PSA reporting errors,
Highlighting survivorship issues –
- What matters to cancer survivors
Walk/n/talk with cancer researchers
Reducing the gaps between Research-Policy-Practice: Cancer Voices SA was the consumer partner in this initiative, 2014-2016
- Consumers Included (a Cancer Voices Australia initiative – this logo is awarded for conferences and events that have meaningful consumer engagement embedded in the planning and delivery).
Sustain and increase our Education and Wellness programs
Improve information and communication about cancer to raise awareness of emerging issues at the local, state and national levels
Advocate to improve cancer quality and safety
Increase consumer involvement in the development, implementation and review of South Australia’s Cancer Services
Advocate for the coordination of the care of children and young people living with cancer
Increase consumer involvement in cancer research projects and participation in clinical trials
Increase our partnerships with policymakers, cancer health professionals and cancer researchers
Cancer Voices advocates for system change, tackling common concerns for people affected by cancer.
Get involved – join our advocacy group or contact firstname.lastname@example.org